About this video
Amanda Roser joins Chris Hutchins to explain how caregivers become record keepers, translators, and coordinators across fragmented healthcare systems. Drawing on her family experience with rare disease, she explores how personal AI could support safer patient advocacy.
Topics covered
- Why caregivers become the connective tissue between clinical specialties
- How fragmented records create a Groundhog Day experience for families
- Where personal AI could help patients organize history, symptoms, and questions
- Why rare-disease care is a stress test for healthcare interoperability
This video discusses healthcare experiences and AI for educational purposes. It is not medical advice and is not a substitute for care from a qualified clinician.
Featured guest
Amanda Roser
VP Marketing, Social Strategy
Marketing and digital-health leader, writer, and rare-disease caregiver who advocates for better care coordination and patient-centered technology.
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